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AIDS

       AIDS Hotline

        Phone: (800) 243-AIDS (Illinois only)

        http://www.hivpositive.com

          American Foundation for AIDS Research

             733 3rd Avenue

             12th Floor

             New York, NY 10017

             Phone: (212) 682-7440 Fax: (212) 682-9812

               The Body

             An AIDS and HIV Information Resource

              http://www.thebody.com/

             Center for Disease Control

             National AIDS Information Clearinghouse

             Phone: (800) 458-5231

             Gay Men's Health Crisis

             119 West 24th Street

             6th Floor

             New York, NY 10011

             Phone: (212) 807-6655 Fax: (212) 337-3656      

            HIV Anonymous Testing & Counseling

             Howard Brown Health Center

             945 West George Street

             Chicago, IL 60657

             Phone: (312) 871-5777 Fax: (312) 871-5843

            National HIV/AIDS Hotline

             Center for Disease Control

             Phone: (800) 342-AIDS

            Pediatric AIDS Foundation

             1311 Colorado Avenue

             Santa Monica, CA 90404

             Phone: (310) 395-9051 Fax: (310) 395-5149

            People with AIDS Coalition

             50 West 17th Street

             8th Floor

             New York, NY 10011

             Phone: (800) 828-3280 Fax: (212) 647-1419

             California AIDS Foundation

             P.O. Box 426182

             San Francisco, CA 94142-6182

             Phone: (415) 863-AIDS or (800) 367-2437 (Northern CA only)

          Albinism 

              Alopecia Areata

             National Alopecia Areata Foundation

             710 "C" Street

             Suite 11

             San Rafael, CA 94901

            Phone: (415) 456-4644 Fax: (415) 456-4274

           NAAF@compuserve.com

            http://www.alopeciaareata.com/

               Anemia

             Fanconi's Anemia International Registry

             Laboratory for Investigative Dermatology

             Rockefeller University

             1230 York Avenue

             New York, NY 10021-6399

             Phone: (212) 327-8862 Fax: (212) 327-8232       

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             Arthritis Foundation

             Post Office Box 1900

             Atlanta, GA 30326

            Phone: (800) 283-7800 Fax: (404) 872-0457

             Web page:  http://www.arthritis.org/

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               Ataxia-Telangiectasia

             Ataxia-Telangiectasia with Cancer

             c/o Immunodeficiency Cancer Registry

             Box 261 Mayo, University of Minnesota

             420 Delaware Street S.E.

             Minneapolis, MN 55455

             Fax: (612) 624-7686

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            National Ataxia Foundation

             2600 Fernbrook Lane

             Suite 119

             Minneapolis, MN 55447-4752

             Phone: (612) 553-0020 Fax: (612) 553-0167

              mailto:naf@mr.net  

 GO TO INDEX              

             Behcet's

             American Behcet's Disease Association

             PO Box 280240

             Memphis, TN 38168-0240

             Phone: 800-7BEHCETS

             Web page: www.behcets.com          

              American Behcet's Foundation, Inc.

             P.O. Box 54063

             Minneapolis, MN 55454-0063

             Phone: (800) 723-4238

             Web page: http://www.w2.com/behcets.html   

   GO TO INDEX          

             Birthmarks

             The Hemangioma and Vascular Birthmark Foundation

             P.O. Box 106

             Latham, N.Y. 12110

             Phone: (518) 782-9637

             E-mail: hvbf@aol.com

             info@birthmark.org

             http://www.birthmark.org  

  GO TO INDEX          

             Bloom's Syndrome

             Bloom's Syndrome Registry

             Laboratory of Human Genetics/New York Blood Center

             310 East 67th Street

             New York, NY 10021

             Phone: (212) 570-3075 Fax: (212) 570-3195

             Cancer             

             American Cancer Society

             625 North Court

             Palatine, IL 60067

             Phone: (800) ACS-2345

           www.cancer.org

             National Cancer Institute

             Office of Cancer Communications

             9000 Rockville Pike

             Building 31, Room 10-A-31

             Bethesda, MD 20892

             Phone: (301) 496-6631 Fax: (301) 402-4945

             Web page: www.nci.nih.gov

             National Coalition for Cancer Survivorship

             1010 Wayne Avenue

             Suite 505

             Silver Spring, MD 20910-5600

             Phone: (888) YES-NCCS (888-937-6227)

             Fax: (301) 565-9670

             E-mail: info@cansearch.org

             Web page: www.cansearch.org

             Chicken Pox

             VZV Research Foundation

             40 East 72nd Street

             New York, NY 10021

             Phone: (212) 472-3181

             Cockayne's Syndrome

             Share & Care

             c/o Teresa Wall

             PO Box 552

             Stanleytown, VA 24168

             Phone: (540) 629 - 2369

             Dermatitis Herpetiformis

             American Celiac Society

             58 Musano Court

             West Orange, NJ 07052

             Phone: (973) 325-8837 Fax: (973) 669-8808

             Celiac Disease Foundation

             3251 Ventura Boulevard

             Number 3

             Studio City, CA 91604-1838

             Phone: (818) 990-2354 Fax: (818) 990-2379

             Celiac Sprue Association/USA

             P.O. Box 31700

             Omaha, NE 68131

             Phone: (402) 558-0600

             Gluten Intolerance Group of North America

             15110 10th Avenue, SW

             Suite A

             Seattle, WA 98166

              Cynthia Kupper

             (206) 246-6652 Fax: (206) 246-6531

              gig@accessone.com

            www.gluten.net

             Dermatomyositis

             Muscular Dystrophy Association (MDA)

             3300 East Sunrise Drive

             Tucson, AZ 85718

             Phone: (800) 572-1717 Fax: (601) 529-5300

              mda@mdausa.org

               www.mdausa.org

             Dermatopathology

             Dermatopathology Foundation

             P.O. Box 377

             Canton, MA 02021

             Contact: Wendy Christison, Administrator

             Phone:(617) 821-0648 Fax: (617) 821-6586

             Dysautonomia

             Dysautonomia Foundation, Inc.

             20 East 46th Street - Suite 302

             New York, NY 10017

             Phone: (212) 949-6644 Fax: (212) 682-7625

             Ectodermal Dysplasia

             National Foundation for Ectodermal Dysplasia

             219 East Main Street

             PO Box 114

             Mascoutah, IL 62258

             Contact: Mary Kaye Richter, Executive Director

             Phone: (618) 566-2020 Fax: (618) 566-4718

             Web page: www.nfed.org

             Email: nfed1@aol.com

             Eczema

             The National Eczema Society

             163 Eversholt Street

             London NW1 1BU

             UNITED KINGDOM

             Phone: (44) 71-388-4097 Fax: (44) 71-388-5882

              www.eczema.org

             The National Eczema Association for Science & Education

             (N.E.A.S.E.)

             1220 SW Morrison Street

             Suite 433

             Portland, OR 97205

              (503) 228-4430 Fax: (503) 224-3363

             Ehlers Danlos Syndrome

             Ehlers Danlos National Foundation

             6399 Wilshire Blvd., Ste 510

             Los Angeles, CA 90048

             Phone: (213) 651-3038

              loosejoint@aol.co

              www.ednf.org/

             Epidermo Dysplasia Verruciformis

             Paul E. Keener Registry

             Robert Byrd Health Sciences Center

             Box 9167

             Morgantown, WV 26506

             Phone: (304) 293-2804 Fax: (304) 293-8824

             Epidermolysis Bullosa

             Epidermolysis Bullosa Research

             Association of America, Inc. (DebRA)

             40 Rector Street, 14th Floor

             New York, NY 10006

             Phone: (212) 513-4090 Fax: (212) 513-4099

              debraorg@erols.com

             www.debra.org

             National Epidermolysis Bullosa Registry

             University of North Carolina-Chapel Hill Department of Dermatology

             Building #1 - CB# 3369

             Bolin Heights

             Chapel Hill, NC 27514-3369

             (919) 966-3321

            jdfine@med.unc.edu

             Phone: (919) 966-2007 Fax: (919) 966-7080

              ljohnson@med.unc.edu

              www.med.unc.edu/derm/ebr.html

             Erythema Multiforme

             Stevens Johnson’s Syndrome

             Stevens Johnson’s Syndrome Foundation

             9285 N. Utica Street

             Westminster, CO 80030

             Phone: (303) 430-9559

             Fax: (303) 487-9359

             sjsupport@aol.com

             http://members.aol.com/sjsupport

             Genetic Disease

             Alliance of Genetics Support Groups

             4301 Connecticut Avenue, NW

             Suite 404

             Washington, DE 20008

             Phone: (202) 966-5557 Fax: (202) 966-8553

             Helpline: (800) 336-GENE

             alliance@capaccess.org

             http://medhlp.netusa.net/agsg/agsgsup.htm

             Hemangiomas

             The Hemangioma and Vascular Birthmark Foundation

             P.O. Box 106

             Latham, N.Y. 12110

             Phone: (518) 782-9637

             hvbf@aol.com

             info@birthmark.org

             http://www.birthmark.org

            Hemochromatosis

             Hemochromatosis Research Foundation

             P.O. Box 8569

             Albany, NY 12208

             Phone: (518) 489-0972 Fax: (518) 489-0227

             Herpes

             Herpes Resource Center

             American Social Health Association

             P.O. Box 13827

             Research Triangle Park, NC 27709

             Phone: (919) 361-8488 (National Herpes Hotline)

             Purchase Herpes Info: (800) 230-6039

              http://sunsite.unc.edu/ASHA/

             Histiocytosis

             Histiocytosis Association of America, Inc.

             302 N. Broadway

             Pitman, NJ 08071

             Phone: (800) 548-2758 Fax: (609) 589-6614

             Human Papillomavirus

             HPV Support Program

             American Social Health Association

             P.O. Box 13827

             Research Triangle Park, NC 27709

             Phone: (919) 361-8400

             Web page: www.ashastd.org

             Arizona HPV Support Group

             7336 E. Shoeman Lane

             Suite 110W

             Scottsdale, AZ 85251

             Phone: (602) 994-8330 or (800) 223-2159 - Hotline

            Los Angeles Area HPV Support Group

             820 Manhattan Avenue

             Number 102

             Manhattan Beach, CA 90266

             Phone: (310) 798-2273

             North Florida HPV Support Group

             North Florida Women's Health and Counseling

             126 Salem Court, Suite B

             Tallahassee, FL 32301

             Phone: (904) 877-3183

             Merrimack Valley HPV Support Group

             Holy Family Hospital

             70 East Street

             Methuen, MA 01844

             Phone: (508) 687-0156 x2432

             Omaha HPV Support Group

             c/o Planned Parenthood

             4610 Dodge St.

             Omaha, NE 68132

             Phone: (402) 397-2739

            Cincinnati HPV Support Group